Chiari Champs Blog

My name is Terri and this blog represents my journey through Chiari and how it affects my life.

Wednesday, January 9, 2008

So much to catch up on

The last time I posted a blog was so long ago and so much has happened since then. I think I spoke too soon and with a positive blind fold on. I did not want to think that anything was wrong, and hoping I was healing as normaly as possible.

I went back to Colorado for my post-op visit in November. Mom went with me and it was good. I was to get an MRI at 10:30 and my Appointment with Dr.Oro was at 4:30. We had a fundraising dinner to go to that night in Aurora and Dr.Oro was the speaker so I was excited about that. I also got to see Joleen for the first time. Well, she had seen me on my birthday and I went to visit her the day after her surgery, but I don't remember either visit. She has been such a rock for me these past few months, I cannot express how greatful I am to have her in my life.

The appointment with Dr. Oro went well. The MRI was fine and everything looked good, so I was sent on my way. I went to the dinner that night, and Dr. Oro, along with several other people got to see what I am like each and every day. As the day progressed, I was in more and more pain. It was as if my head was being pulled down to the Earth with a giant magnet. It SUCKED. I also experience some incredible pain with any movement where gravity has some affect. It is like my head and neck are no longer attached. That gives me the sharpest pain, but there is the long lasting throb that goes along with it.

My mom and I were on the plane to come back to California on Wednesday and Dr. Oro's office called. They wanted a CT scan in hopes of finding out what was causing all the pain. I was already on the plane so I got the CT done the day after I got home. Guess what...????.... It was normal.

So, off to physical therapy I went. For 5 weeks, all I did was manual traction. Don't let me fool you, the traction was the BEST. It was the best I felt all day long. Anything other than pulling on my head was torture. Yes, I love the pulling. That is an indicator of Craniocervical Instability. YIKES!! I don't want that. I want to be healing normal and getting better. I want to go back to school and get my degree. That's what I want.

I guess I will just have to wait to figure out what will make me better. It has been 3 1/2 years. Another night won't hurt....well, I am sure it will hurt, but I hope it won't kill me.